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Caren Robinson - Journal

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Posted 2014-04-26T19:11:25Z

FROM CAREN

Caren Robinson                                                      04/26/2014, 2:44 pm
 

Is have finally been accepted to MaryFree Bed Rehabilitation. This place was always our family's first choice since the wreck happened. I am very excited and scared at the same time. I met with a "Dr. Kramer" yesterday along with my Case Manager and my mom (my husband couldn't be there because of work - which sucked - but necessary). I have a different view of how the appointment went than my mom and case manager feel it went....but we only had an hour to talk to him so had to "nutshell" EVERYTHING....which to me, meant he doesn't have all the information he needs and my brain was really struggling to keep up and keep track of everything. I am assured by him and the others that he does, and that he will get more as I start working with therapy. He wants to address some very important things right away (that by the way should never have been stopped at the previous rehab or once I came home should have been scheduled by the previous rehab before coming home)....physical, occupational, speech therapy, and an appointment with the psychologist to have the cognitive exam done....yes FINALLLLLYYYY - this part makes me happy. He is concerned about my right shoulder becoming something called "frozen shoulder" (which I only learned about this week) so wants me started right away. I will try to remember not to talk about where I came from but where I am going, because HOPE doesn't focus on the past. However, the past is important to the present, and changing the future. I would say forgive and forget but that would be too funny because I already have a problem with the forgetting part (like not remembering the wreck).....anyway my brain isn't making this sound any better.....

The part I am scared of is MORE pain, which I am also assured of I WILL experience. I am also scared of not getting any better than I am right now. I notice lots of improvements and no improvements at the same time even though that makes no sense. My family is starting to open up more things to me from the first hospital/ER experience that they never shared with me before, or I don't remember them sharing. Some of the things I hear make me proud, some make me sad, some things I appreciate and am thankful for, but the worst part, is that I don't remember any of it. Some of my family doesn't understand how I cannot remember since I was talking to them and communicating. I really don't understand that myself and that is something I will have to talk to this psychology guy about......I am also scared of ......did I mention the pain (sarcasm). I am not sure how I can take any more AND they are going to try and get me off all my pain meds (which also scares the crap out of me considering I am almost always in pain still). I was told the body has to heal before the brain can heal. This seems like an odd statement to me. but the two things that stick out to me from my communication with yesterday is something my casemanager said -

the appointment with the Dr. only gives him a :snapshot view" not the whole picture or the whole story. He will get that through reviewing records and my treatment there. The second thing that sticks out to me is KEEP AN OPEN MIND.

This is also challenging for me......however, my goals and desires to improve outweigh my goals and desires to express myself and my opinions right now. Right now I feel like I am a different person in my mind, but there are still some things that are "me". I feel like I am different in lots of ways....so I think I have had to keep an open mind....which equals a confused mind - for quite some time now......since the wreck.

I also wanted to tell you that their scale shows I lost 3.5 lbs since my visit to my Pimary Dr. shows....so that is supposedly a loss of nearly 30 lbs since March 20. At this rate, I might actually be able to succeed in other parts of my life too.....

So there's the update.....Monday is crazy I meet with the City Atty. - they are letting me skip the Judge to accomodate my present disabilities....still haven't found a traffic attorney willing to work with payments so looks like I am going solo.....this should be interesting....mom will be with me, hoping for more miracles....[...]

Posted 2014-04-25T16:06:59Z

Never Give Up

The Best of Success
A Treasury of Inspiration
by Mac Anderson & Bob Kelly
The difference between the impossible and the possible lies in a person's determination. -Tommy Lasorda

The year was 1983. In Australia, the long-distance foot race from Sydney to Melbourne was about to begin, covering 875 kilometers—more than 500 miles! About 150 world-class athletes had entered, for what was planned as a six-day event. So race officials were startled when a 61-year-old man approached and handed them his entry form.

His name was Cliff Young, and his “racing attire” included overalls and galoshes over his—work boots.

At first, they refused to let him enter. So he explained that he’d grown up on a 2,000-acre farm, with thousands of sheep. His family could afford neither horses nor tractors so, when the storms came, his job was to round up the sheep. Sometimes, he said, it would take two or three days of running.

Finally, they let Cliff enter, and the race began. The others quickly left him way behind, shuffling along in his galoshes. But he didn’t know the plan included stopping each night to rest, so he kept going.

By the fifth day, he had caught them all, won the race, and became a national hero. He continued to compete in long-distance races until well up in his seventies. He was an inspiration to millions and a great encourager of younger runners.[...]

Posted 2014-04-25T01:37:10Z

FROM CAREN


Caren Robinson
                                                                         04/24 
9:24 pm
 

This was a crazy day. I met the sweetest lady today. She came to our house and she is my new Case Manager from a different company. I have spoken to her on the phone. It is the first time we met in person. I was excited to share with her that..............................................I have an appointment at MaryFreeBed.........finally. She has a trusting face and her energy makes me feel comfortable and she will be with me at my MaryFreeBed appointments and orthopedic appointments. This made me relax a lot. She knows a lot about the things I am about the face and is able to explain things to me in a way I understand. Part of me is careful to trust her after my bad experience with my last case manager - but something tells me she is different - she knows what is going on. She feels different, and trusting my feelings so far has worked out pretty good.

Tomorrow is a good day. It is the beginning of recreating my life. My hope is that they are able to help me with everything I need help with regarding my body in general. I am happy scared and a windy day of feelings right now. 

I hope my insomnia doesn't keep me up too long tonight...[...]

Posted 2014-04-25T01:33:44Z

FROM CAREN

 


Caren Robinson
                                                             
Apr 23rd at 1:34 am
 

nearly 2 weeks without my primary pain meds due to waiting on approval from autoclaim.....this pain is consuming me....sooooo consuming me......trusting things move smoothly and efficiejtly....waiting on people to do their job and send the records to MaryFreeBed so I can start therapy.....some days are just bleak as night and the only light is hidden up between the trees and I am in a well of pain looking at the light and hoping someone hears my inner screams....and pulls me out...meantime my brain is swimming with puzzle pieces that consume my daily thoughts and my lack of memory and having to repeat myself if frustrating to everyone so I feel isolated within myself sometimes....which probably makes no sense.........but there it is, still the same

I was also brave and spoke with the Officer from the accident scene. I thanked him for being good to my son at the scene and distracting him and being nice to us in the hospital. I also spoke to him openly. He seems trustworthy. I hope my gut feeling is right about that. I hope he does the right thing....

I also spoke with my medical attorney today...that was encouraging and non informative at the same time.

my job is working with me until June, so praying for some answers by then.....I have already passed the 12 week FMLA deal.....so technically they could let me go....but HR told me the local management team advocated to give me an extension....another blessing given to my life.....I don't know what to feel except thanks..........meanwhile I keep being told to reduce my stress.....how can I rrest when there is all this stuff around me that just keeps unfolding..

I am so tired all the time and why does the pain still continue soooooo much....??? Anywhoooooo...

My hope at this point is for people at a certain facility to do their jobs properly so it can continue down the chain to help me get better......I will never give up....it's not in me.......pain or no pain....I have to keep reminding myself that pain means I am alive and that is the focus I must keep......[...]

Posted 2014-04-22T18:53:05Z

Doctor's Appointment

   Well, Caren has seen her PCP.  Dr. Ann is amazing!  She told Caren we're in this for the long haul, probably two years.  
       Also, Dr. Ann expressed to Caren the importance of resting, body and mind/brain.  When the brain is exhausted, concussion symptoms are worsened.  When the brain is tired, the signals are 'weakened' or confused making signals to the body erratic - body temperature difficult to control, emotions more out-of-control (crying, laughing, extreme fluctuations, etc.), walking becomes more difficult, headaches more frequent, forgetfulness increases, and dizziness more prevalent.  Cognitively, Caren is slow to process conversations, and sometimes has a challenge understanding.
      Caren expressed concern to Dr. Ann that she is being accused of faking her injuries, especially her brain injury.  Dr. Ann kinda' laughed, and told Caren that those judgmental people really aren't important in her life, to "invite them over on one of your bad days."  She explained that people are just ignorant, and only go by outward experience. Dr. Ann also explained that there is documented medical proof of her TBI, not to worry, and to be easy with herself.  She explained that Caren's physical injuries are healing nicely. Brains, on the other hand, are unique and each brain injury is different.  The key is time, and rest.  
      We are excited that Disability Advocates have been here to the house, Caren has a Case Manager,  insurance is slow but sure, AND we are excited for Caren to start therapies.
      Thank you, each and every one of you, for your love, support and prayers.[...]

Posted 2014-04-20T03:18:43Z

FROM CAREN

 

Caren Robinson                              11:02 pm
 

Also, I would love to have visitors, or if you have an opportunity, or a comment, email or message, or a phone call. It's nice to share energy with people and I miss working and being around people in general. I just want to let you know that I value you coming here.

Thanks for keeping tabs on this....[...]

Posted 2014-04-20T03:16:45Z

Saturday, 04/19, continued

 

Caren Robinson                               10:49 pm
 

I just want to say thank you to all who have helped me and continue to. I also want to thank the help from the future that is coming forth. I want to say thank you to my family who is a never ending well of support. I want to thank my mom who has been my primary caregiver and helper and is comepletely exhausted. I will never receive anything but my gratitude for it. I want to thank those of you who follow this page each day, each week, or even if this is your first time. 

I want to let you all know that things might get worse before things get better and I beg you stay with me through this journey. This is not an easy road......still learning to walk properly again and still dealing with things in a different way than ever before. Perhaps in the end, the reinvention of Caren will be even better and stronger and HOPE will flourish.[...]

Posted 2014-04-20T03:14:29Z

Saturday, 04/19

 

Caren RobinsonNApr 19th at 4:50 am
 

Part of the police report...................


"UPON MY ARRIVAL, WYOMING FIRE AND AMR PARAMEDICS WERE
ALREADY ON SCENE AND IN THE PROCESS OF TREATING BOTH
PATIENTS. I NOTICED THE DRIVER OF ONE VEHICLE WAS LYING IN
THE MIDDLE OF GEZON PKWY WITH A LARGE AMOUNT OF BLOOD
NEAR HER HEAD. HER HEAD WAS ALSO COVERED WITH SEVERAL
BLANKETS AND HER FACE WAS CONCEALED."

......yep.....that was me,,,,[...]

Posted 2014-04-20T03:12:19Z

Friday, 04/18

Caren RobinsonNApr 18th at 4:19 am
 

So it's Thursday night/Friday morning at 3:40 am so still Thursday to me.....today was a long hard painful and deeply emotional day. 

I had some xrays redone for my scapula which also showed my ribs....still a lot to work on and heal.... and they had me moving my right arm a lot to see what I could and could not do- I can still only bend it at the elbow and not raise it in the air--- I can only do a chicken wing about a little less than half way with considerable pain still....apparently the 3D xrays they showed me before came from the main hospital which was disappointing because they didn't have the actual machine to do that and I really was hoping to know more about my spine and rib repair and cartilage starting to form or not especially since the ribs are so painnful. We also remembered our last visit when the Dr. called additional people in to see the x ray because "we don't usually see people with these kind of injuries survive" or something to that affect..... they had at least 2 hours worth of questions which was suppppppppppppppppperrrrrr hard on my brain and my emotions.....some questions didn't have answers that even made sense or choices of answers. The woman I was working with though her name was Jane and she makes me feel comfortable and was super patient with my challenges.

Today I got to see my husbands work for the 1st time since he started there...so that was awesome....it was hard to disguise my pain as it kept growing as did my anxiety in the vehicle for so long.....we only stopped there because it was on the way to see THE Van and Austin just had to pee....I just had to see it in person.....for myself. I simply cannot believe it hasn't been destroyed yet. It's like it's been waiting there this whole time for me to see it and find all these puzzle piieces that have been gifted to us.....we took video also (totally the idea of the lady at the car place so I want to thank her for that idea).....My mom took pictures with the rep from the car place with us right there. The rep was also awesome in pointing out damage to the back of the vehicle in specific spots which we added to the video as well. The only part that sucked is both our phones ended up running out of battery life...so that part was emotionally hard to accept as I wanted to say more....but my head was swimming by that time. I saw it and every nook and cranny is now imbedded in my soul. I will say this much. I wasn't prepared for the full emotional impact of seeing that in person.....I did really well for most of it....there was just sooooooooooooooo much .............destruction.

Mom picked the boys up from school and I was needing to go to bed like NOW. I remember eating something as I was nauseaus got to the bed and fell "OUT" around 4ish and didn't wake up until almost 9pm....no energy whatsoever ....it has taken me forever to type this but I figured with my insomnia the effort of typing would make me sleepy.....so I will try to update you with something positive tomorrow or sometme this week.....there is something amazing I am leaving to mom to talk to you about that added another piece to the piuzzle for us, but she wanted to post about that and quite honestly it should be her that tells you what THAT is all about.... 

I do notice my depression increasing and my feeling of being helpless increasing. My HOPE while very much was there today is a kite in the wind that I am fiercely keeping my brain to focus on so it doesn't blow away.

Today I am overwhelmed tomorrow offers new opportunities for healing and growth.

Still looking for a traffic Attorney....ugh....just no time to deal with that today....[...]