Don't miss Natalia's Bay News 9 interview!!![...]
Natalia - Journal
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Today was the meet 'n greet at the school.......the day BEFORE school officially started.....a day full last year's memories. A bittersweet day.
Last meet 'n greet, I ran out of the school STRAIGHT to the pediatrician's, STRAIGHT to the hospital to be admitted.
On the Thursday before, I rushed after work to take Natalia to the pediatrician's because brother accidentally poked her in the eye....really, it was accidental! I casually mention the "intermittent" on/off pain in her leg. After examining her, he says give her Motrin...it's growing pains. That weekend....her casual pain became excruciating, as it woke her up from her sleep AND Motrin would not touch it (I later found out that the tumor was breaking thru the bone). By Monday morning, it subsided enough that she could go to meet and greet her new teachers. I was told by the pedi's office to schedule with an ortho, so I did....two weeks away.
Natalia's health deteriorated fast during the meet and greet....prompting an administrator to ask her what was wrong....after telling her, she quickly pointed the way back to the pediatrician's. (Our angel...thank GOD for her!) I took Natalia back to the pediatrician's, and as soon as I sat down in the waiting room, I noticed she had a low grade fever. They worked us in quickly and when the doctor put her on the table, it was obvious...palpation was not necessary.....there was a large, red, hot to the touch mass on her thigh. The pediatrician turned to me and said, that wasn't there on Thursday...you need to go STRAIGHT to the hospital...do NOT go home. And so her journey started....on the 8th floor of the children's hospital....on Morphine...scheduled for a stat MRI at 7AM.....
On a Monday...August of 2013...after meet and greet. A Monday full of unknowns and uncertainties.....EXCEPT ONE.
The fact that JESUS was evident every step of our journey....giving us the strength, peace, comfort, refuge...daily. Even though that was a time of uncertainty....ONE thing was for certain......JESUS. HE carried us throughout he journey, with extended grace and fresh new mercies daily..........ALL FOR HIS GLORY![...]
It is with great sorrow that I am writting this delayed post. I have had a difficult time posting about our sweet friend, Edgar....he went home to be with his creator. As a mother walking this journey, I know all too well the fine line our children walk through between life and death.......a very fragile line.
Edgar was given 24-48 hours to live.....JESUS gave him 14 days! In those 14 days, RESTORATION, RENEWAL, HEALING, FORGIVENESS, AND UNITY were flowing out of his room! All within his family, and those that were bystanders! God's presence was so evident, that even the hardest of hearts melted in forgiveness. God was working miracles, even in the midst of adversity.......even in the midst of what APPEARED to be the worst case scenario.
Edgar kept repeating..."...even when you are suffering, lift your arms and PRAISE JESUS, HE deserves ALL the praise!"
The night he found out that there was nothing else the doctors could do for him, and he was hooked up to machines, including oxygen. Two male nurses walked into his room and sang his favorite song, OCEANS by HILLSONG UNITED. The sweet presence of The Lord began to fill the room, and Edgar took off his mask, lifted his arms and began to sing and praise JESUS....even AFTER he knew that the chemo didn't work.
What an example!! I was blessed to have met him, and I will see him again...THAT is the HOPE that we have in JESUS CHRIST!
Thank you in advance for continuing to pray for his mom, Claudia.....Edgar was her only son.[...]
The doctors gave him the BAD news on Monday the 28th of July...that there was nothing else that they could do for him...he had up to 2 days to live. I visited on the 29th and the Chaplin was there, an interpreter, a cart full of snacks and drinks for mom.....doctors were coming in to say they were making him comfortable....heavily sedating him....grief counselors at hand....ALL waiting for him to pass.....at any moment.
Edgar slept and slept, and as soon as he woke up, he began to PRAISE and THANK JESUS CHRIST, and he spoke of things to all those around him...things he said GOD was teaching him....IN THE MIDDLE OF YOUR STORM.......PRAISE JESUS![...]
Welcome to the Natalia support family! This site is for family and friends, old and new, to organize our efforts to support this extraordinary person. This page will serve as your home base for rallying the troops, receiving updates , and raising dearly needed funds to support Natalia . Here's the plan:
Your First Step: Please take 30 seconds to click on the "Follow" button on the top right of this page. This will allow you to receive updates, read journal entries, make donations, share Natalia ’s story on social media, and help the family with week-to-week calendaring needs. Though not mandatory to follow Natalia ’s page, we encourage you to easily create an account with your name and email in order to be able to post photos, leave comments and sign up as a helping hand on the Calendar page. Feel free to upload a photo of yourself to your profile so we can get to know and recognize others on Natalia ’s support team. After clicking “Follow” above, read on to learn more about what you can do to help.
Journal: This tab is where you can read the latest entries posted for Natalia and our support team. You may see additional authors writing updates here to help alleviate pressure for Natalia and expedite information sharing. Each post is followed by a photo and name of the author of the entry. You can reply with supportive comments to any journal entry, or click on the name of its author to send a private message.
Posts: This is where you can leave an encouraging message for Natalia and family, and to read thoughts left by others! If you have something pressing you'd like suggest that everyone sees (e.g. a fundraiser or upcoming event you're spearheading), please don't hesitate to contact us via private message so we can consider sharing it more widely in the Journal sections. There will undoubtedly be many coordinated efforts and events ahead, and we want to make certain they’re organized and publicized through this site to help drive the greatest possible impact.
Calendar: Please see this important section to learn what the family needs NOW. This will be an especially helpful section for locals in close proximity to Natalia . This is an up-to-date calendar which will list the family's immediate needs such as child-care, rides, and meals to help most in the short term. If you see a need posted and can fill it, please sign up through the calendar page directly (i.e. not through private communication) to let us and others know that you've committed to that need. Please check back often to help out with the most recently posted needs!
Donations: The very most impactful way to help Natalia ’s is to make a direct donation right now. After insurance participation, bills and related costs are expected to reach several thousand dollars. This fund will be used at the sole discretion of Natalia and family to help manage all related expenses, and will give them the flexibility to take time off work as needed to directly support Natalia ’s. Donations can be made securely using credit or debit card for any amount. PostHope.org generously makes these donations free of any fees. All donations, large and small, come with the eternal gratitude. Thank you for your generosity in considering what amount you are personally able to give.
Perhaps more importantly, you will also find the tools to share your donation and Natalia ’s story with friends and family via Facebook and social media. After donating, please click the social media buttons to share far, wide, publicly and OFTEN! We believe that many kind strangers online will feel moved by Natalia ’s journey.
Notifications: After clicking “Follow” above, you’ll then see a tab to manage “Notifications”. If you feel you’re receiving too many or too few email notifications, please check this section to tailor notifications to your areas of interest. For example, if you want to receive journal updates but not new calendar posts, or any combination of notifications from this site, you can do set them to your preference this section.
Don’t Forget! If you haven’t done so already, please click “Follow” on the top right. It’s your very next step to showing your support!