We are home!!! Yayyy!! :)
We are holding off on the transfusion as long as we can. She is still very pale and weak.....sleeping most of the time. I pray that her numbers stay up and that she may be able to go to school this week![...]
We are back in the hospital for the second cycle/month of chemo. Everything went smoothly this time around, we cleared for chemo right away! All the labs were perfect, EXCEPT her hemoglobin...it's very low. According to her oncologist we will be needing a transfusion, sooner than later:(([...]
We are in awe of the different GESTURES of LOVE Shown towards our family. Kindness, thoughtfulness, and generosity are overflowing. May God continue to Bless you and your family in a MIGHTY way. We are grateful for the donations, acts of kindness, meals, words, deeds, hugs, and shavings! Natalia sofia has found tremendous support in that! This weekend, family and friends stepped up to shave their heads for my beautiful baby girl! What an amazing show of LOVE....we ALL felt it. [...]
Coming back home from the hospital was bittersweet. We were looking forward to sleeping thru the night, and above all.....in your own bed! Things were different in more ways than one. :( This time around, she is weaker and nauseous with the occasional bout of vomiting....and of course less hair.[...]
Thank you for your prayers everyone!...from Natalia Sofia. I know God will help you like he did with me. I can do all things through Christ who strengthens me. (Philippians 4:13). God gave me strength thru my chemo and God will strengthen you. I know God will give you grace and the power to do anything that comes your way![...]
So we are now on day four of the protocol....and NOTHING. Praise God for that! No vomiting or major side effects..........EXCEPT for the overnight loss of hair. By far, this was the HARDEST pill to swallow. Overnight, hair everywhere.....literally. To deal with the aftermath of physical changes and emotional turmoil at 8 years of age, is unthinkable......I'm speechless.[...]
Last Monday, labs showed Sofia's white blood count to be too low for chemo. Today, one day after she was supposed to start chemo, her counts are good and she will be admitted for five days. These next few days of chemo, according to the staff, are the hardest mix of chemo drugs in her protocol.[...]
Welcome to the Natalia support family! This site is for family and friends, old and new, to organize our efforts to support this extraordinary person. This page will serve as your home base for rallying the troops, receiving updates , and raising dearly needed funds to support Natalia . Here's the plan:
Your First Step: Please take 30 seconds to click on the "Follow" button on the top right of this page. This will allow you to receive updates, read journal entries, make donations, share Natalia ’s story on social media, and help the family with week-to-week calendaring needs. Though not mandatory to follow Natalia ’s page, we encourage you to easily create an account with your name and email in order to be able to post photos, leave comments and sign up as a helping hand on the Calendar page. Feel free to upload a photo of yourself to your profile so we can get to know and recognize others on Natalia ’s support team. After clicking “Follow” above, read on to learn more about what you can do to help.
Journal: This tab is where you can read the latest entries posted for Natalia and our support team. You may see additional authors writing updates here to help alleviate pressure for Natalia and expedite information sharing. Each post is followed by a photo and name of the author of the entry. You can reply with supportive comments to any journal entry, or click on the name of its author to send a private message.
Posts: This is where you can leave an encouraging message for Natalia and family, and to read thoughts left by others! If you have something pressing you'd like suggest that everyone sees (e.g. a fundraiser or upcoming event you're spearheading), please don't hesitate to contact us via private message so we can consider sharing it more widely in the Journal sections. There will undoubtedly be many coordinated efforts and events ahead, and we want to make certain they’re organized and publicized through this site to help drive the greatest possible impact.
Calendar: Please see this important section to learn what the family needs NOW. This will be an especially helpful section for locals in close proximity to Natalia . This is an up-to-date calendar which will list the family's immediate needs such as child-care, rides, and meals to help most in the short term. If you see a need posted and can fill it, please sign up through the calendar page directly (i.e. not through private communication) to let us and others know that you've committed to that need. Please check back often to help out with the most recently posted needs!
Donations: The very most impactful way to help Natalia ’s is to make a direct donation right now. After insurance participation, bills and related costs are expected to reach several thousand dollars. This fund will be used at the sole discretion of Natalia and family to help manage all related expenses, and will give them the flexibility to take time off work as needed to directly support Natalia ’s. Donations can be made securely using credit or debit card for any amount. PostHope.org generously makes these donations free of any fees. All donations, large and small, come with the eternal gratitude. Thank you for your generosity in considering what amount you are personally able to give.
Perhaps more importantly, you will also find the tools to share your donation and Natalia ’s story with friends and family via Facebook and social media. After donating, please click the social media buttons to share far, wide, publicly and OFTEN! We believe that many kind strangers online will feel moved by Natalia ’s journey.
Notifications: After clicking “Follow” above, you’ll then see a tab to manage “Notifications”. If you feel you’re receiving too many or too few email notifications, please check this section to tailor notifications to your areas of interest. For example, if you want to receive journal updates but not new calendar posts, or any combination of notifications from this site, you can do set them to your preference this section.
Don’t Forget! If you haven’t done so already, please click “Follow” on the top right. It’s your very next step to showing your support!