Bandages came off today! Praise God!
Natalia - Journal
Read Entries & Updates
Dealing with the aftermath of surgery is unpredictable. You just never know what you will be dealing with.....exactly. This time around, for some reason, it seems the pain is greater. She's been on pain meds around the clock.......when she usually forgoes any pain medication. In order for her pain to stay within her threshold, we have managed it very closely but extreme exhaustion has definitely set in....
As far as her surgical leg, she's been able to stand on her leg for only few minutes putting some weight on it; but not for long. It is just a matter of time.[...]
On the eve of yet another surgery......I am reflecting on the Lord's goodness throughout our journey. I am so grateful that I don't get to do this alone! That HE is my pillar of strength, my supernatural peace, and my comfort when everything seems hopeless.
You would think I would be used to this by now....but I'm not. Neither is Natalia. It does not get any easier.....Truth be told, I despise it. SHE despises it. Especially the moment when we say our goodbyes, and the anesthesiologist injects her with a cocktail, with the nurses surrounding her stretcher to whisk her off into the operating room to perform surgery. A piece of my heart is broken off and is taken in the operating room with her.
It is heart wrenching, gut wrenching......and at times there are no words to describe such helplessness. Not to mention Natalia's overwhelming apprehension about having another painful surgery, and all her fears, thoughts, and feelings start rushing back....especially on the night before. As a parent, you wish you could be the one enduring her multiple surgeries, procedures, catheters, chemo, radiation, and all the pain (internal and external) that encompasses all of it.
Her surgery is to correct her leg length discrepancy. Due to her strong chemo/radiation treatment, her affected leg is growing at a slower rate than the other. In addition to the hardware that was put in place last August, they will be placing another device to give her the best outcome possible. There is a small window of opportunity in which this is done....and the time is NOW.
When it comes to trusting God there is no easy way either. Especially when you are in the midst of a chaotic, blinding storm. You HAVE to choose between BELIEVING and TRUSTING in him, his word and his promises or not. IT'S A CONSCIOUS CHOICE. You either choose to believe him at his word. Or not.
If he says that he will be with me through The Valley of the shadow of death. I WILL FEAR NO EVIL, because I KNOW that HE is with me. HE.SAID.SO.
I choose to BELIEVE JESUS. Trusting that he is there with Natalia Sofia, while they are operating.....entrusting my baby girl into the arms of Jesus Christ! He's got this![...]
Truly Honored that God made me your mami! I'm loving watching you become the soldier JESUS chose you to be!
💞What a Blessing you are to us💞
🎉🎉Happy 12th Birthday!!🎉🎉🎉
Welcome to the Natalia support family! This site is for family and friends, old and new, to organize our efforts to support this extraordinary person. This page will serve as your home base for rallying the troops, receiving updates , and raising dearly needed funds to support Natalia . Here's the plan:
Your First Step: Please take 30 seconds to click on the "Follow" button on the top right of this page. This will allow you to receive updates, read journal entries, make donations, share Natalia ’s story on social media, and help the family with week-to-week calendaring needs. Though not mandatory to follow Natalia ’s page, we encourage you to easily create an account with your name and email in order to be able to post photos, leave comments and sign up as a helping hand on the Calendar page. Feel free to upload a photo of yourself to your profile so we can get to know and recognize others on Natalia ’s support team. After clicking “Follow” above, read on to learn more about what you can do to help.
Journal: This tab is where you can read the latest entries posted for Natalia and our support team. You may see additional authors writing updates here to help alleviate pressure for Natalia and expedite information sharing. Each post is followed by a photo and name of the author of the entry. You can reply with supportive comments to any journal entry, or click on the name of its author to send a private message.
Posts: This is where you can leave an encouraging message for Natalia and family, and to read thoughts left by others! If you have something pressing you'd like suggest that everyone sees (e.g. a fundraiser or upcoming event you're spearheading), please don't hesitate to contact us via private message so we can consider sharing it more widely in the Journal sections. There will undoubtedly be many coordinated efforts and events ahead, and we want to make certain they’re organized and publicized through this site to help drive the greatest possible impact.
Calendar: Please see this important section to learn what the family needs NOW. This will be an especially helpful section for locals in close proximity to Natalia . This is an up-to-date calendar which will list the family's immediate needs such as child-care, rides, and meals to help most in the short term. If you see a need posted and can fill it, please sign up through the calendar page directly (i.e. not through private communication) to let us and others know that you've committed to that need. Please check back often to help out with the most recently posted needs!
Donations: The very most impactful way to help Natalia ’s is to make a direct donation right now. After insurance participation, bills and related costs are expected to reach several thousand dollars. This fund will be used at the sole discretion of Natalia and family to help manage all related expenses, and will give them the flexibility to take time off work as needed to directly support Natalia ’s. Donations can be made securely using credit or debit card for any amount. PostHope.org generously makes these donations free of any fees. All donations, large and small, come with the eternal gratitude. Thank you for your generosity in considering what amount you are personally able to give.
Perhaps more importantly, you will also find the tools to share your donation and Natalia ’s story with friends and family via Facebook and social media. After donating, please click the social media buttons to share far, wide, publicly and OFTEN! We believe that many kind strangers online will feel moved by Natalia ’s journey.
Notifications: After clicking “Follow” above, you’ll then see a tab to manage “Notifications”. If you feel you’re receiving too many or too few email notifications, please check this section to tailor notifications to your areas of interest. For example, if you want to receive journal updates but not new calendar posts, or any combination of notifications from this site, you can do set them to your preference this section.
Don’t Forget! If you haven’t done so already, please click “Follow” on the top right. It’s your very next step to showing your support!