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Natalia - Journal

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Posted 2017-06-11T00:19:59Z

POST-OP FOLLOW UP!

Dealing with the aftermath of surgery is unpredictable. You just never know what you will be dealing with.....exactly. This time around, for some reason, it seems the pain is greater. She's been on pain meds around the clock.......when she usually forgoes any pain medication. In order for her pain to stay within her threshold, we have managed it very closely but extreme exhaustion has definitely set in....
As far as her surgical leg, she's been able to stand on her leg for only few minutes putting some weight on it; but not for long. It is just a matter of time.[...]

Posted 2017-06-06T04:51:00Z

Thank you for praying!

On the eve of yet another surgery......I am reflecting on the Lord's goodness throughout our journey. I am so grateful that I don't get to do this alone! That HE is my pillar of strength, my supernatural peace, and my comfort when everything seems hopeless.
You would think I would be used to this by now....but I'm not. Neither is Natalia. It does not get any easier.....Truth be told, I despise it. SHE despises it. Especially the moment when we say our goodbyes, and the anesthesiologist injects her with a cocktail, with the nurses surrounding her stretcher to whisk her off into the operating room to perform surgery. A piece of my heart is broken off and is taken in the operating room with her.
It is heart wrenching, gut wrenching......and at times there are no words to describe such helplessness. Not to mention Natalia's overwhelming apprehension about having another painful surgery, and all her fears, thoughts, and feelings start rushing back....especially on the night before. As a parent, you wish you could be the one enduring her multiple surgeries, procedures, catheters, chemo, radiation, and all the pain (internal and external) that encompasses all of it.
Her surgery is to correct her leg length discrepancy. Due to her strong chemo/radiation treatment, her affected leg is growing at a slower rate than the other. In addition to the hardware that was put in place last August, they will be placing another device to give her the best outcome possible. There is a small window of opportunity in which this is done....and the time is NOW.
When it comes to trusting God there is no easy way either. Especially when you are in the midst of a chaotic, blinding storm. You HAVE to choose between BELIEVING and TRUSTING in him, his word and his promises or not. IT'S A CONSCIOUS CHOICE. You either choose to believe him at his word. Or not.
If he says that he will be with me through The Valley of the shadow of death. I WILL FEAR NO EVIL, because I KNOW that HE is with me. HE.SAID.SO.
I choose to BELIEVE JESUS. Trusting that he is there with Natalia Sofia, while they are operating.....entrusting my baby girl into the arms of Jesus Christ! He's got this![...]